Wellcome Trust

Wellcome Trust - data and IT requirements

"We are a global charitable foundation dedicated to achieving extraordinary improvements in human and animal health.

We support the brightest minds in biomedical research and the medical humanities. Our breadth of support includes public engagement, education and the application of research to improve health.

We are independent of both political and commercial interests." (Wellcome Trust Website)

UoL DMP Document - Non-RCUK

Wellcome Trust data and IT Requirements - Introduction and summary

Information correct as at July 2013.

Please refer to the full Non-RCUK data mangement planning guidance document.pdf

Please also refer to the University guide 'Introduction to Managing Research Data – For Researchers and Students'

The Wellcome Trust published a position statement on data management and sharing in January 2007 and this was revised in August 2010.

This states that all funded researchers should maximise access to their research data with as few restrictions as possible. It requires applicants whose proposed research will generate data that hold significant value as a resource for the wider research community to submit a data management and sharing plan as part of the application process.

The Wellcome Trust policy is aligned with others including MRC, BBSRC, the US National Institutes of Health and the NCRI Cancer Informatics initiative (refer to University data management guides regarding MRC and BBSRC).

Data management and sharing plan
All applicants for funding should refer to the Trust's guidance on developing a data management and sharing plan .

Wellcome Trust requires that all funded researchers maximise the availability of their research data with as few restrictions as possible.  When applying via the biomedical sciences or medical humanities funding streams and the proposed research will result in data holding significant value as a resource for the wider research community, then you will be required to submit a data management and sharing plan prior to an award being made.

When is a Data management and sharing plan required?
Plans are required in situations where the data outputs form a resource from which researchers and other users would be able to generate additional benefits, where the primary goal is to create a database resource and other research generating significant datasets that could be shared for added value e.g. where the data has clear utility for research questions beyond those that the data generators are seeking to address.

Examples of applications requiring a data management and sharing plan would include large-scale genetic association studies of common diseases; genome-wide or large-scale functional genomic studies in a specific organism; and longitudinal studies of patient and population cohorts.

For studies generating small-scale and limited data outputs, a data management and sharing plan will not normally be required.

Data management and sharing plan content
There is not a set format for data management and sharing plans.

They should be proportionate, both to the scale of the datasets generated and their likely level of value to the research community.

Questions to address concern how data outputs will be managed and shared:

  • What data outputs will your research generate and what data will have value to other researchers?
  • When will you share the data?
  • Where will you make the data available?
  • How will other researchers be able to access the data?
  • Are any limits to data sharing required - for example, to either safeguard research participants or to gain appropriate intellectual property protection?
  • How will you ensure that key datasets are preserved to ensure their long-term value?
  • What resources will you require to deliver your plan?
RDM news and events
  1. The University of Leicester Figshare for data digital archive is now available for research staff and PhD students. User guidance on upload/data deposit.
  2. Information Governance training is now available, provided by e-LfH (an NHS organisation). The University has registered to access this NHS resource and individual accounts can be set up by sending name and email address to Andrew Burnham.
  3. There is now a standard University Privacy Impact Assessment process where data collection or receipt, or systems purchase or development may have privacy consequences
  4. The University has adopted a simple data classification model which must be applied by the research PI and/or data owner
  5. We share our RDM survey: overview findings presentation as well as the results of our 2015 survey on Your research data management needs
  6. There is now a University Information Governance web presence
  7. Our Data Management Planning documents have been updated - hard copies can be obtained if you contact researchdata@le.ac.uk
  8. Jisc has published a new RDM strategy document - "Directions for RDM Management in UK Universities"
  9. The Partridge Review - HSCIC Data Release Review - Full report (3.58 Mb) and Summary
  10. The Economic and Social Research Council (ESRC) have published a new Research data policy underpinned by nine core principles and Data management plan guidance (26/03/2015)
  11. RDM Principles approved by the University.
  12. DMPonline version 4.0 - DCC "DMPonline" (Data Management Planning) v4 has gone live. You can use this web based form to create your Data Management Plan, and share it with your collaborators.
  13. Research funder specific web pages (accessible via 'Data Planning & Management - What you need to do') for data planning and management guidance (AHRC, BBSRC, EPSRC, ESRC, MRC, NERC, and STFC)
  14. 'Data Planning & Management - what you need to' - a web page to take you through what you need to do about data planning and management.
  15. 'RDM - The Movie' is released! The 4 minute digital story of research data work here at Leicester.

... more News and Events

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