Information and Videos

Index

 

Videos and presentations

Clinical Genetics videos

The Clinical Genetics team at the University Hospitals of Leicester have put together a series of videos giving information and advice about different types of cancer, symptoms and prevention.

Visit the Clinical Genetics YouTube channel.

 

Lifestyle and Cancer Awareness Event talks and presentations

Playlists of some of the talks from our February and October 2013 Lifestyle and Cancer Awareness Workshops can be found on the Clinical Genetics YouTube channel and through the player below.

The following talks were filmed at the February 2013 Lifestyle and Cancer Awareness Workshop focusing on breast, ovarian and prostate cancer:

Introduction by Dr Julian Barwell

Breast Cancer Genetics by Dr Joyce Solomons - slides available here (PDF)

Tamoxifen and Breast Cancer by Dr Julian Barwell - slides available here (PDF)

Towards new blood tests for breast cancer by Professor Jacqui Shaw

Preventative Breast Surgery by Consultant Surgeon Miss Poppy Valassiadou

Risk-reducing sugery for ovarian and endometrial cancer by Gynaeoncology Consultant Surgeon Mr Quentin Davies

Support groups session - National Hereditary Breast Cancer Helpline by Wendy Watson MBE, with introduction by Dr Julian Barwell

Support groups session - PROSTaid prostate cancer support group by Rob Banner, with introduction by Dr Julian Barwell

Support groups session - Loughborough Cancer Self-Help Group by Eileen Henderson, with introduction by Dr Julian Barwell

Talking about cancer genetics with the family by Cancer Genetics Counsellor Demetra Georgiou - slides available here (PDF)

Summing up by Dr Julian Barwell

 

The following talks were filmed at the October 2013 Lifestyle and Cancer Awareness Workshop focusing on preventing cancer through diet and drugs and lifestyle advice and support:

Introduction by Dr Julian Barwell

Benefits of Occupational Therapy by Prof. Annie Turner, Emeritus Professor of Occupational Therapy, University of Northampton and Dr Hayley Singlehurst-Mooney, Registered Occupational Therapist, Modern Human

Curcumin and Chemoprevention for FAP (Familial adenomatous polyposis) by Dr Lynne Howells, Research Associate at the University of Leicester (PDF slides available here) and Dr Joey Wood, Research Fellow at University Hospitals of Leicester NHS Trust (PDF slides available here)

Chemoprevention for familial breast cancer – Tamoxifen as a preventative agent by Dr Julian Barwell (PDF slides available here)

Diet and Cancer by Helen Kennedy, Lead Cancer Information and Support Specialist, MISS North Team, Macmillan Cancer Support  (PDF slides available here)

 

Healthy lifestyle

Leading a healthy lifestyle can help to prevent cancer but the advice in the media can often be confusing. Macmillan Cancer Information Specialist and Dietician Helen Kennedy gives a presentation at our lifestyle and cancer awareness events to provide some clarity and good advice about diet, lifestyle and cancer prevention.

Helen has also made a helpful video for the Macmillan Cancer Support cancer information website explaining the role of diet in cancer risk and offering tips for healthy eating. A version in British Sign Language is also available.

Helen Kennedy diet and cancer video still

Healthy Living.

Good advice on eating well and cancer prevention can be found on the following cancer support and research charities websites':

 

Along with a healthy diet, exercise is key to reducing the risk of cancer. Information is again offered by:

 

Occupational Therapy

Occupational Therapists work with a whole range of people in order to enhance their health and well-being through the use of occupations they find meaningful. With an understanding of how people can be helped to live fulfilling lives, an Occupational Therapist can help to have healthy living patterns, to prioritise and perform daily activities and to deal with transition, anxieties and concerns.

You can find out more about Occupational Therapy on the College of Occupational Therapists website.

Registered Occupational Therapist Dr Hayley Singlehurst-Mooney attended our October 2013 Lifestyle and Cancer Awareness Workshop and specialises in helping people with serious illnesses, including cancer. Her private practice, Modern Human, has more information about the services she offers.

 

Screening and prevention

Breast cancer screening and prevention in high risk families

The updating of the National Institute for Health Care and Excellence (NICE) guidelines on familial breast cancer in June 2013 has generated a lot of interest, particularly in the use of Tamoxifen for the prevention of breast cancer in unaffected individuals with a strong family history. The updated guidelines, information for the public and news about the new guidelines can be found on the NICE website or by clicking on highlighted words in this paragraph. There are also some helpful articles on the BBC news website.

In the Leicester Mercury (26 June 2013) Dr Julian Barwell commented on the new guidelines:

"This does give women at risk of inherited breast cancer another option. The threshold at which we can test women has also been lowered so we will be able to test more women... Taking Tamoxifen is not as effective at lowering the risk compared with preventative surgery but it does cut the risk by about one-third."

In January 2013 Dr Julian Barwell was interviewed (mp3) on BBC Radio Leicester to give advice about testing, screening and preventative treatment, including the use of Tamoxifen, for inherited breast cancer. This was in response to the consultation on new guidelines for familial breast cancer by NICE (The National Institute for Health and Clinical Excellence) launched on 15 January 2013.

Dr Barwell also spoke about the use of Tamoxifen in the prevention of breast cancer at the Lifestyle and Cancer Awareness events held in February and October 2013.

Tamoxifen leaflet

We have also produced a twelve point information sheet about the use of Tamoxifen in inherited breast cancer prevention (PDF).You can watch the videos of his talk above or on our YouTube channel.

Useful links:

Information about Tamoxifen - Macmillan Cancer Support

Information about Tamoxifen - Cancer Research UK

Tamoxifen fact sheet - Breast Cancer Care (PDF)

Familial breast cancer (breast cancer in the family) - NICE information for the public

More treatment options for women at risk of breast cancer - NICE news

What are the options for women with inherited breast cancer? - NICE news feature

Women at increased risk of breast cancer to be offered risk-reducing drugs - Macmillan Cancer Information blog

Drugs available for cancer risk women - Leicester Mercury, 26 June 2013

Breast cancer: NHS to offer tamoxifen to at-risk women - BBC News, 25 June 2013

Q&A: Drugs to prevent breast cancer - BBC News, 25 June 2013

National Hereditary Breast Cancer Helpline Wendy Watson welcomes breast cancer drug tamoxifen offer - BBC News Derby, 25 June 2013

 

Calculate your risk of inherited bowel cancer

This short questionnaire (PowerPoint) will help to determine whether there may be a gene in your family connected to an increased risk of the development of bowel cancer.

  • Bowel cancer affects 1 in 14 men and 1 in 19 women.
  • The majority of bowel cancer does not run in families and is not due to an inherited susceptibility.
  • Approximately 5% of bowel tumours are caused by the inheritance of a spelling mistake in a single high risk of bowel cancer gene.
  • It is possible to have a family history of bowel cancer which is due to a combination of inherited and environmental factors without a single high risk gene being identified or present. This is because a lot of inherited bowel cancer is probably linked to subtle variations in a large number of unidentified genes each associated with a small increase in risk.
  • A family history of bowel cancer, particularly in association with bowel cancer and polyps diagnosed at a young age, or in association with the following tumours may suggest an inherited link: Stomach, gallbladder, prostate, womb (endometrial), fallopian tube, ovarian, kidney/bladder (urotherlial tract) or skin cancer.

If you are concerned about anything you have read or would like further information, please go to the Macmillan Cancer Support website for more information and videos about bowel cancer.

 

Research into the use of chemicals to prevent cancer

Our Clinical Genetics team have produced an information sheet and video about aspirin and cancer.

You can also view the recording of the talk about Curcumin (Turmeric) and Chemoprevention for FAP (Familial adenomatous polyposis) that was given at our Lifestyle and Cancer Awareness workshop in October 2013.

More information about chemoprevention research can be found on Leicester's Experimental Cancer Medicine Centre Network website.

 

Understanding news stories about research

The media often reports stories of new science discoveries or even 'miracle cures' for cancer and other conditions but how can you make sense of what they're claiming and know what to believe? Supporting Families with Cancer and all the organisations we work with and have listed on our useful contacts page do our best to pass on trustworthy news and there are many other websites that present the facts and help you make sense of the stories:

NHS Choices - Behind the Headlines sets news stories in their research context.

Cancer Research UK - Science Update blog

Macmillan Cancer Support - Understanding cancer research trials (clinical trials)

World Cancer Research Fund - Cancer Prevention Blog

Sense About Science - "I’ve got nothing to lose by trying it" guide shares things people can do – from getting involved in clinical trials to finding good evidence based information – and explains the questions people can ask about evidence to help tell the beneficial from the bogus and hold these claims at bay.

Sense About Science have produced a number of other helpful resources, including “I don’t know what to believe...” Making sense of science stories (a guide to how scientists present and judge research, and how you can ask questions), Evidence Based Medicine Matters (a booklet about how evidence-based medicine is the key to the success of modern healthcare), and a guide to Making Sense of Statistics that are mentioned in news stories.

PubMed Health - Reviews of clinical effectiveness research with easy-to-read summaries.

Testing Treatments - How we tell whether one treatment is better than another and what makes a fair test.

Health Talk - A unique database of personal experiences and information about over 50 conditions – video, audio and text.

 

Further information

Find out more about cancer prevention and care at ecancerpatient.

Listen to Podcasts created by Cancer Research UK with lots of up to date information on a range of cancer related topics.

More information about genetics and cancer can be found on GENIE’s award-winning Virtual Genetics Education Centre.

Links to other organisations can be found on our Useful Contacts page.

Share this page:

Contact Details

genielogo.png

GENIE CETL
Department of Genetics
University of Leicester
University Road
Leicester
LE1 7RH
United Kingdom

Tel: +44 (0)116 252 3319
Tel: +44 (0)116 252 3479

Fax:+44 (0)116 252 3378

Email: genie@le.ac.uk

Twitter: GENIE_tweets

Facebook: LeicesterGenie

GENIE supports ...

 Student iGEM team