Information for Healthcare Professionals

The SFWC project aims to gather up to date research and information for healthcare professionals to ensure they are well informed.

A project summary poster (PDF) was presented at the UK Cancer Genetics Group Spring Meeting 2013

The project was also presented as an implementation case study at the Health Services Research Network Symposium in June 2013. The slides and notes are available here.

 

Information and training for healthcare professionals

We have undertaken research into the tipping points that lead to referral to Clinical Genetics and the importance of recognising a possible family history of cancer at different stages of the care pathway. As a result of this we propose a new and simple tool to help identify 'at risk' patients and families. This piece of research won the University Hospitals of Leicester Women's and Children's Division Audit of the Year Award in May 2013. More information about this audit is given in Dr Julian Barwell's presentation at the UHL Clinical Audit Forum.

Dr Julian Barwell and colleagues run training masterclasses for palliative care and other healthcare staff involved in the cancer care pathway with Macmillan Cancer Support. Workshops have taken place in Leicester and Leeds to date. The flyer (PDF) and programme (PDF) for the workshop help in November 2012 can be found here.

The 'One hundred things patients might want to know about cancer prevention and survivorship' (PDF) document has been produced to assist healthcare professionals in answering patients' questions

 

Equality and familial cancer services

The Clinical Genetics team contributed to a report by the Genetic Alliance UK published in January 2013. 'Identifying family risk of cancer: Why is this more difficult for ethnic minority communities and what can help?' outlines areas of concern about the inequality of accessing familial cancer services.

 

Chemoprevention and screening

The updating of the National Institute for Health Care and Excellence (NICE) guidelines on familial breast cancer in June 2013 has generated a lot of public interest, particularly in the use of Tamoxifen for the prevention of breast cancer in unaffected patients at high familial risk. The updated guidelines, including the updated familial breast cancer pathway (the main changes are on pages 7-9 & 43-45) and news about the new guidelines can be found on the NICE website. Guidance for patients from Dr Barwell and other news can be found on our Videos and Information page.

Curcumin is being researched as a chemopreventative agent at the University of Leicester. Two papers of interest have been published regarding the use of curcumin; a review paper (PDF) covering all of the more recent trials and areas of research interest and a research paper (PDF) outlining the final summary of a specific curcumin trial.

The use of aspirin as a chemopreventative agent has also been documented. We have produced an information leaflet (PDF) outlining the areas of interest regarding its usage.

 

Calculating risk of inherited bowel cancer

We have developed a PowerPoint questionnaire that can be used with patients to help determine if they have a significant family history of bowel cancer (CRC) requiring specialist input on screening or genetic testing.

There is also a version for patients to use themselves on our videos and information page.

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Contact Details

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GENIE CETL
Department of Genetics
University of Leicester
University Road
Leicester
LE1 7RH
United Kingdom

Tel: +44 (0)116 252 3319
Tel: +44 (0)116 252 3479

Fax:+44 (0)116 252 3378

Email: genie@le.ac.uk

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