Adult Psychiatric Morbidity Survey 2014 privacy notice

The Department of Health Sciences is part of the University of Leicester. The University of Leicester is the Data Controller for your information.

This privacy notice explains how we use your personal information and your rights regarding that information

What information are you collecting?

The Adult Psychiatric Morbidity Survey (APMS) series provides data on the prevalence of both treated and untreated psychiatric disorder in the English adult population (aged 16 and over). The 2014 survey is the fourth in a series and was conducted by NatCen Social Research, in collaboration with the University of Leicester, for NHS Digital.

Approval to access APMS 2014 data was acquired by the Health Services & Population Research Department and a Data Sharing Agreement is in place.

The dataset provided by NHS Digital contains limited personal information that could potentially allow participants in the study to be identified; however the risk is considered very small, making this highly unlikely.

Why are you collecting my data?

The University of Leicester (UOL), Department of Health Sciences, are conducting a quantitative study with the overall aim of identifying the associations between Attention Deficit Hyperactivity Disorder (ADHD) with Autism Spectrum Disorder (ASD) and other psychiatric conditions, in the adult general population and additionally, the association of adult ADHD and ASD with possible risk and protective factors.  The study will utilise data from the Adult Psychiatric Morbidity Surveys (2014), a nationally representative survey of mental health, to analyse these associations.  Use of data from the 2014 APMS will be purely a secondary analysis of anonymised data with no attempts to link back to the original sample.

The APMS 2014 data will also be utilised to update and continue an existing programme of studies to examine and understand national prevalence, trends and associations of mental and physical health conditions. This programme will continue an existing collaboration on the previous APMS datasets (1993-2007) with the APMS ‘writing group’, based at the National Centre for Social Research.

Your information is collected for the purpose of research only.

How will you use this data?

APMS Data will be downloaded to a secure, networked folder at the University of Leicester that will only be accessible to approved research staff at the University of Leicester.  Data for analysis will be disseminated in an anonymised format only. No identifiable data will be stored.

Although the analysis conducted by the University of Leicester will not identify any individual from the data provided to it by NHS Digital, we take great care in protecting it. There are strict contractual standards imposed by NHS Digital as the data provider that we adhere to. These include storing the APMS data on secure University of Leicester servers and restricting access to approved research staff. As legally required, the data is not kept for longer than needed and is securely destroyed at an agreed date (see below).

All information collected will be handled with care and in compliance with the Data Protection Act (1998), the General Data Protection Regulation (2018) (GDPR), and the university’s Research Data Management Policy.

Data will be analysed using appropriate statistical software and key findings will be written up for publication in academic journals in an anonymised format. All published results will be at the aggregate level and will only be used to draw population-level inferences.

Findings from the survey will ultimately contribute to the development of future policies and improvements to health services that will benefit Members of Parliament.

What is the legal basis for processing the data?

  • Public Task
    • University of Leicester’s legal basis for processing personal data under GDPR is function of a public task (by a public organisation) as set out in Article 6(1), point (e) (“necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the controller”) and Article 9(2), point (j) (“necessary for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes”).

If you are sharing my data with others, who are you sharing it with?

Data will only be accessible by approved University of Leicester research staff and will not be transferred to or shared with any other parties.

How long will process my data for?

Data will be retained for three years in order to complete the study’s objectives and to allow for changes to the study’s outputs in the event that reviewers request additional processing or analysis.

What are my rights and how can I enforce them?

  • Right to be informed
  • Right of access
  • Right to restrict processing
  • Right to object
  • Rights related to automated decision making including processing

The National Data Opt-out Programme is also not applicable in relation to this study. Requests for data opt-out under this programme cannot be fulfilled as data is non-identifiable and cannot be associated with individual requestors.

How do I complain to the Information Commissioner’s Office?

The Information Commissioner can be contacted on:

Post: Information Commissioners Office, Wycliffe House, Water Lane, Wilmslow, Cheshire, SK95AF.
Tel: 0303 123 1113.
Email contact can be made by accessing www.ico.org.uk 

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Data Protection Officer

The Data Protection Officer is:

Elisabeth Taoudi, Data Protection Officer and In-House Commercial Lawyer, University of Leicester, University Road, Leicester, LE1 7RH

0116 229 7640

et177@le.ac.uk