PANDA -- Preterm AND After

Background

This study aims to use an approach based on questionnaires completed by parents to establish a routine system for the collection of follow-up information at a corrected age of 2 years for very preterm infants.  Data will be collected on The Neonatal Survey infants (known until recently as the Trent Neonatal Survey (TNS)) who fulfil the following criteria: born from 01/01/2007 onwards to a mother resident in East Midlands and Yorkshire, less than 31 weeks gestation, survivors at 2 years of corrected age.

The study started on 1st April 2008 and currently has an end date of 31st March 2013.  Funding is being provided by NORCOM (North Derbyshire, South Yorkshire + Bassetlaw Commissioning Consortium), East Midlands Neonatal Network and Yorkshire Neonatal Network.

Aims

The study aims to provide information about the long-term outcome of very preterm infants to health professionals for the counselling of parents.  The study also aims to monitor the appropriateness of treatments and the cost effectiveness of neonatal intensive care services. All data collected will be checked, collated, entered onto an Access database and analysed in the Dept of Health Sciences, University of Leicester. Data security and confidentiality protocols are strictly adhered to in all the studies in the Dept of Health Sciences, University of Leicester.

Personnel

Professor David Field, Professor of Neonatal Medicine
Professor Elizabeth Draper, Professor of Perinatal and Paediatric Epidemiology
Mrs Helen Holden, Study Administrator

Contact

The PANDA Study Administrator, TIMMS, Dept of Health Sciences, University of Leicester LE1 6TP.
Tel: +44 (0) 116 252 5466  Fax: +44 (0) 116 252 3272  Email: timms@leicester.ac.uk

Documentation

Documents available for download:
Consent Form
Additional Contact Information Sheet
Parent Information Sheet

All of the above documents are also available in the following languages:

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