CONTACT DETAILS
Department of Health Sciences
University of Leicester
Adrian Building, University Road
Leicester LE1 7RH
Tel: 00 44 116 229 7259
Email: sew40@le.ac.uk
RESEARCH INTERESTS
My research interests include:
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Legal, ethical, and policy implications of population-based and disease-based biobanks
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Legal, ethical, governance and policy issues faced by large-scale international scientific research consortia
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Public health ethics
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Public health genomics
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Research ethics review
PROFESSIONAL ACTIVITIES
Member, Ethics and Policy Committee, International Cancer Genome Consortium
www.icgc.org
Member, ELSI Task Force, Canadian Partnership for Tomorrow Project
http://www.partnershipagainstcancer.ca/priorities/research/strategic-initiatives/canadian-partnership-for-tomorrow-project/
SELECTED PUBLICATIONS
Wallace SE and Kent A. Population biobanks and returning individual research results: mission impossible or new directions? Human Genetics 2011. DOI: 10.1007/s00439-011-1021-x.
Wallace SE and Knoppers BM. (forthcoming) The role of P3G in encouraging public trust in biobanks. In: P Dabrock, J Taupitz and J Ried, eds. Trust in Biobanking. Springer:Heidelberg (in press)
Wallace SE, Lazor S and Knoppers BM. (forthcoming) What is in a clause? A comparison of clauses from population biobank and disease biobank consent materials. P Dabrock, J Taupitz, and J Ried, eds. Trust in Biobanking. Springer:Heidelberg (in press)
Wolfson M, Wallace SE, Masca N, Rowe G, Sheehan NA, Ferretti V, LaFlamme P, Tobin MD, Macleod J, Little J, Fortier I, Knoppers BM, Burton PR. DataSHIELD: resolving a conflict in contemporary bioscience--performing a pooled analysis of individual-level data without sharing the data. International Journal of Epidemiology 2010;39(5):1372-82.
International Cancer Genome Consortium. International network of cancer genome projects. Nature 2010 Apr 15;464(7291):993-998.
Toronto International Data Release Workshop. 2009. Prepublication data sharing. Nature Sep 10;461(7261):168-70.
Wallace S, Lazor S and Knoppers BM. 2009. Consent and population genomics: The creation of generic tools. IRB 13(2), 15-20.
Bédard K, Wallace S, Lazor S and Knoppers BM. 2009. Potential conflicts in governance mechanisms used in population biobanks. In: J Kaye and M Stranger, eds. Governing Biobanks. Ashgate:Aldershot.
