Lecturer of Population & Public Health Sciences
Department of Health Sciences
University of Leicester
Adrian Building, University Road
Leicester LE1 7RH
Tel: 00 44 116 229 7259
My research interests include:
Legal, ethical, and policy implications of population-based and disease-based biobanks
Legal, ethical, governance and policy issues faced by large-scale international scientific research consortia
Public health ethics
Public health genomics
Research ethics review
- Nuffield Council on Bioethics Working Group on Biological and Health Data
- International Cancer Genome Consortium (ICGC) Ethics and Policy Committee
- Research Oversight Committee for iCHANGE (International CHildhood Astrocytomas iNtegrated Genomics and Epigenomics) Consortium
- International Rare Diseases Research Consortium Biobanks Working Group
- ICGC UK Prostate Oversight Group
- Public Population Project in Genomics and Society (P3G) Paediatric Platform
- Canadian Partnership for Tomorrow Project ELSI Task Force
Wallace, SE and Knoppers BM. Harmonised consent in international research consortia: an impossible dream? Genomics, Society and Policy 2012; 7(1):35-46
Murtagh, MJ, Demir, I, Jenkings, KN, Wallace, SE, Murtagh, BPP, Boniol, M, et al. Securing the Data Economy: Translating Privacy and Enacting Security in the Development of DataSHIELD. Public Health Genomics 2012; 15:243-253
Murtagh, MJ, Thorrison, G, Wallace, SE, Demir, I, Kaye, J. Fortier, I, Harris, JR, Cox, D, Deschênes, M, Laflamme, P, Ferretti, V, Sheehan, N, Hudson, T. Cambon Thomsen, A, Stolk, R, Knoppers, BM, Brookes, AJ. Burton, PR. ‘Navigating the perfect [data] storm’. Norwegian Journal of Epidemiology 2012; 21(2):203-209
Jones, EM, Sheehan, N, Masca, N, Wallace, SE, Murtagh, MJ, Burton, PR. DataSHIELD - shared individual-level analysis without sharing data: a biostatistical perspective. Norwegian Journal of Epidemiology 2012; 21(2):231-239
Wallace, SE. The needle in the haystack – international consortia and the return of individual research results. Journal of Law, Medicine and Ethics 2011; 39(4):631-639
Wallace, SE and Kent, A. Population biobanks and returning individual research results – mission impossible or new directions? Human Genetics 2011; 130:393–401
Wolfson M, Wallace SE, Masca N, Rowe G, Sheehan NA, Ferretti V, LaFlamme P, Tobin MD, Macleod J, Little J, Fortier I, Knoppers BM, Burton PR. DataSHIELD: resolving a conflict in contemporary bioscience--performing a pooled analysis of individual-level data without sharing the data. International Journal of Epidemiology 2010;39(5):1372-82.
International Cancer Genome Consortium. International network of cancer genome projects. Nature 2010 Apr 15;464(7291):993-998.
Toronto International Data Release Workshop. 2009. Prepublication data sharing. Nature Sep 10;461(7261):168-70.
Wallace S, Lazor S and Knoppers BM. 2009. Consent and population genomics: The creation of generic tools. IRB 13(2), 15-20.